We have had many wonderful nurses at Providence Portland Medical Center. During our first round, one nurse, in particular, was especially dear to us. That's the only time we've had her. Friday morning, to our delight, Berkeley was our nurse, so that made staying the extra night worthwhile. Mark had no other neurotoxicity episodes--not even those crazy vivid dreams, so we were able to leave the hospital by 9 am Friday morning. Yahoo!
Mark doesn't sleep very well when he first gets home. One issue is that he is coming off of high doses of hydrocortisone. He's learned that his brain stays too active when his cortisol levels are high, and he can't stop thinking about food. He knew it was high when he started meal planning during the middle of the night. Another problem is that he starts coughing every time he is almost asleep, which wakes him up. Last night he slept from midnight to 3:30, so hopefully, he can nap today. His body is weak, tires quickly, and requires pain meds for sore muscles. Compared to the way he felt during the treatments, that's nothing, so he is happy! He added, "Happy to be here on earth, with my dear Ane, and happy to have such wonderful family and friends like you!!"
Perspective is everything, still praying AND believing...know without doubt that I'm praying for you guys every time God lays you on my mind and heart,
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