Since Mark's blood pressure normalized and he felt a little better, Mark got another dose of IL-2 at 7 am. We are amazed at how different his body responds to each one. Today he didn't have the rigors nor much nausea, and his blood pressure stayed at an acceptable level. During our morning brief with the doctors, they fully expected that he would have to go back on the "neo," as they call the blood pressure meds. That has not happened. YEA--he is not fond of the cuff with 15 minute BP checks.
Today he feels crummy with flu-like symptoms along with itching. Meds help, but he is restless and having trouble sleeping, but too sick to do anything else. Occasionally, he will pick up his phone to check emails, but he puts it down a few minutes later. I feel sad that I can't do anything to help him except rubbing his skin down with anti-itch cream. The nurses have to help with just about everything else. He is never allowed out of bed without a nurse to assist. His blood pressure could drop quickly, which could cause him to pass out, and fall. No one wants that!
No afternoon dose was given. Tomorrow, he could get more, or this could be it. The doctors make the call depending on how he is doing. While he definitely feels lousy, we know that it could be so much worse, so we feel blessed!
Dearest Ane, Thank you so much for the consistent updates. I've been thinking and praying for you too as I know how difficult it must be to be witness to this radical treatment Mark is braving. You both are so courageous. Holding you both close in pray. Much Love & Big Hugs,Julie
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