This morning Mark was still suffering from the side effects of the two infusions yesterday--it seems like he's a one-a-day guy. His reaction was severe enough that no infusions were given today. Ian told me that along with the side effects he's already had, Mark now has neurotoxicity. Some of the toxins break through the brain barrier, causing agitation and confusion. That's when hallucinations often happen, but he still didn't see any bunnies!
The nausea was so bad earlier today that he couldn't even tolerate a sip of water. Getting pills down was impossible. The normal nausea meds weren't working, so he was given Ativan. It caused him to sleep most of the day, but considering how miserable he was, that was a good thing! This afternoon, he ate some ice cream, and this evening he even ate part of his dinner, so that's huge progress. We're moving in the right direction, still hoping to go home tomorrow.
Dr. Taylor is actually surprised that Mark got 5 doses due to his adrenal insufficiency. The nurse explained that this treatment is like putting logs on a fire. It takes several to get it going, but once it's going, it only takes a log or two to keep it going. Because he doesn't produce cortisol, it didn't take as much to activate his immune system. Next time, his body will know what to do, so he will likely have even fewer doses.
I may have mentioned before--Dr. Urba and Dr. Curti were both involved in the research and development of IL-2, and Dr. Urba ministered the first dose here some 25 or so years ago. They are experts! Dr. Taylor is learning from Dr. Curti. Our nurse today (and Tuesday) has been working with IL-2 patients for about 10 years. She is amazing--competent and kind!
This is the ONLY hospital where IL-2 patients stay in regular rooms even when they develop severe side-effects. such as Mark had when his blood pressure dropped so low. Typically, when that happens, the patient is sent to the ICU for intravenous phenylephrine (NeoSynephrine). Here, the cancer unit nurses are trained to administer it, so going to the ICU was not necessary. We are so fortunate to live close to this Cancer Center. People come from all over the world to be treated here.
How we appreciate the love and support that we have received from so many. Your prayers are making a difference! Our wall is getting full of notes, photos, artworks, etc., from our family--just a little room left for tomorrow!
No comments:
Post a Comment