On the
11th of July we met with Dr. Urba. Since Mark looked so good
he saw no reason for a PET scan even though it’s been a year since the last
one. He did have blood drawn, as usual. Several days later Mark saw
the lab results and e-mailed Dr. Urba as the LD total count was bit high.
Normal is 100 to 210 and it was 275. The only other time that has happened
was when the tumor was growing in the adrenal gland. Dr. Urba agreed that
it was high but also indicated that this test is not a very accurate or
definitive test for metastatic melanoma. He ordered another blood draw
for one month later and indicated that if it was still evaluated we would
proceed with a PET scan. On August 11th Mark had another blood
draw and the count was still elevated and a bit higher than before at
298. Dr. Urba ordered a PET scan which was done last Friday, the 19th.
This morning
Dr. Urba called to tell us that the PET scan was not totally clear – a tumor is
growing once again in the same adrenal gland. He is a bit baffled as to
why that is the only place, but that is GOOD! The adrenal gland can be
removed and studied to determine what may be different. He has already
called one of the best surgeons in the US that deals with this type of cancer
surgery and Dr. Vern agreed that removing
the adrenal gland would be best. Dr.
Vern is in Tampa, Florida but he recommended a surgeon in Portland whom he
personally trained and considers excellent. Dr. Urba has contacted Dr. Diego Muilenburg. His office will contact us to schedule an appointment to discuss the next steps and whether
the surgery can be laparoscopic or incision. For now Mark will stop using the
current medications as he has started having nausea. He might as well get
a rest from the side effects. We will keep you posted as we learn
more. We are SO grateful that we are not immediately facing the more
invasive treatments! All is well!!
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