Mark had a PET scan done on the 18th of May. Dr. Taylor texted later that day, indicating that there were no active tumors. When Mark went to see him on the 20th, he saw the scan. The mass that has always been in the adrenal gland area is smaller than on the previous scan, which is great news! This has always been the problem area -- whenever tumors grow, this one grows and is the one that has caused so much pain. Currently, it is NOT active, although there is still a mass present. Mark will continue taking Mekinist and Taflinlar for as long as they work. He will no longer go off of these medications. So far, side effects have been minor.
His biggest challenge now is just figuring out how much Hydrocortisone to take daily. If he doesn't get enough, he gets dizzy, nauseous, and super fatigued. Of course, there are side effects if he takes too much, but he is figuring it out, and life continues on as a new normal. We are enjoying the time we have at home together, so we are not bothered much by the Corona-virus. Our children and grandchildren bring us so much joy, and we are so grateful that they are close by!